The patient’s perspective of structure and function of national registers

Precongress Course 19

EIM   European IVF Monitoring Consortium (EIM) 


Course coordinator

Markus S. Kupka (Germany)


Course type

Basic 

 

Course description

This one-day-course should reflect the relevance of national IVF-registries and what the outcome of these registers is in a patient perspective.

 

Target audience

All involved in data collection: clinicians, embryologists, scientists, counsellors, technicians and politicians

 

Educational needs and expected outcomes 

The topics chosen are widely used in the area of data collection. The participants should understand the content and relevance of registers on Medically Assisted Reproduction and learn how data can be used to improve clinical care at a local, national or broader level with the final objective of reaching optimal surveillance in reproductive medicine. The focus will be placed on the outcome of national and international registers towards patients.

 

Programme



Sunday 25 June 2023

Chairs
Jesper M.J. Smeenk, The Netherlands
Markus S. Kupka, Germany
09:00 - 09:30
Government agency or clinician initiative What is the most useful to consumers?
Silke J. Dyer, South Africa
09:30 - 09:45
Discussion
09:45 - 10:15
The EuMAR project – Will this initiative change the benefits and public attention for couples planning to have children in Europe ?
Christine Wyns, Belgium
10:15 - 10:30
Discussion
10:30 - 11:00
Coffee break
Diane De Neubourg, Belgium
Andreas Tandler - Schneider, Germany
11:00 - 11:30
Tools to build up a registry: choosing the relevant indicators for editing a proper core dataset
Markus S. Kupka, Germany
11:30 - 11:45
Discussion
11:45 - 12:15
Seminal publications from SART for the public and their impact on IVF practice today
Sangita Jindal, U.S.A.
12:15 - 12:30
Discussion
12:30 - 13:30
Lunch
Christina Bergh, Sweden
Karel Rezabek, Czech Republic
13:30 - 14:00
Using UK Register data to improve patient care – The British Experience
Bethan Rowbottom, United Kingdom
14:00 - 14:15
Discussion
14:15 - 14:45
Best practices of IVF registry: patient-centered approach to surveillance, research and clinical practice
Dmitry Kissin, U.S.A.
14:45 - 15:00
Discussion
15:00 - 15:30
Coffee break
Irene Cuevas-Saiz, Spain
Christine Wyns, Belgium
15:30 - 16:00
What do patients do with the outcome: is it part of their decision process? Representative of a patient’s organization
Anita Fincham, Poland
16:00 - 16:15
Discussion
16:15 - 16:45
External visits to IVF centers for better patient care – the Swiss experience
Christian De Geyter, Switzerland
16:15 - 17:00
Discussion