Stakeholder event 5 December 2023
This event brought together national competent authorities and other stakeholders from across Europe to discuss and collaborate on the establishment of a pan-European registry for medically assisted reproduction. The goal was to provide an overview of the EuMAR Project, covering topics such as sharing survey results from national competent authorities, the defined MAR parameters, GDPR compliance and outlining future steps. The event encouraged stakeholder discussions and networking, highlighting the project's significance for advancing collaboration and knowledge in the field of data collection in assisted reproduction.
Agenda
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10:00 - 10:05
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Welcome
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Carlos Calhaz-Jorge
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10:05 – 10:15
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The EuMAR Project, rationale, main aims and work packages
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Christine Wyns
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Session 1
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The EuMAR project – Laying the basis
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Chairs: Carlos Calhaz-Jorge, Christian De Geyter
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10:15 – 10:30
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Work package 3 - NCA survey results and data flow analysis
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Cristina Magli
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10:30 – 10:45
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Work package 4 - Defining MAR parameters and ensuring harmonization
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Jesper Smeenk
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10:45 – 11:00
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EuMAR's potential to create value for patients
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Bojana Santic
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11:00 - 11:30
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Discussion
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11:30 – 12:00
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Coffee Break
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Session 2
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The EuMAR project – Facing data protection
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Chairs: Jesper Smeenk, Veerle Goossens
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12:00 – 12:15
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GDPR considerations for EuMAR (health data registries)
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Jolien Clemens & Ruben Roex (Timelex)
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12:15 – 12:30
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Work package 5 - IRCC Concept & EuMAR registry prototype
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Christine Wyns
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12:30 - 13:00
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Discussion
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13:00 – 14:00
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Networking Lunch
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Session 3
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The EuMAR project – The next steps
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Chairs: Christine Wyns, Cristina Magli
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14:00 – 14:15
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Work package 6 - Embarking on the next steps with the Pilot Study
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Christian De Geyter
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14:15 – 14:35
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EuMAR and the EU SoHO Platform
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DG SANTE
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14:35 – 14:50
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Work package 7 - Perspectives of interoperability and innovation
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Jesper Smeenk
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14:50 - 15:20
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Discussion
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15:20 – 15:30
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Work package 2 - Spreading knowledge: Leveraging project dissemination resources
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Laura Rossignoli
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15:30 – 15:40
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Closing remarks
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Carlos Calhaz-Jorge
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Please note changes may occur.