How national IVF-registries are build up and should work - using data to improve clinical care

Precongress Course 14

EIM   European IVF Monitoring Consortium (EIM) 


Course coordinators
Christine Wyns (Belgium), Markus S. Kupka (Germany)


Course type
Basic 

 

Course description
This one-day-course should reflect the relevance of a national IVF-registry and describe tools and rules on how to build up a data collection system and use the data to improve clinical care.

 

Target audience
All involved in data collection: clinicians, embryologists, scientists, counsellors, technicians and politicians

 

Educational needs and expected outcomes 

The topics chosen are widely used in the area of data collection. The participants should understand the content and relevance of registers on Medically Assisted Reproduction and learn how data can be used to improve clinical care at a local, national or broader level with the final objective of reaching optimal surveillance in reproductive medicine. The focus will be placed on how to move towards global optimal care in reproductive medicine.

 

Programme




Monday 28 June 2021

Session 1
Chairs
Christine Wyns, Belgium
Markus S. Kupka, Germany
09:00 - 09:30
20 years of data collection in Europe – what have we learned?
Christian De Geyter, Switzerland
09:30 - 09:45
Discussion
09:45 - 10:15
The focus of governmental registries: Costs, surveillance and safety
Howard Ryan, United Kingdom
10:15 - 10:30
Discussion
10:30 - 11:00
Coffee break
Session 2
Tatjana Motrenko Simic, Montenegro
Edgar Vasile Mocanu, Ireland
11:00 - 11:30
Tools to build up a registry: Choosing the relevant indicators for editing a proper core dataset
Markus S. Kupka, Germany
11:30 - 11:45
Discussion
11:45 - 12:15
How can we use data to improve clinical care?
Christine Wyns, Belgium
12:15 - 12:30
Discussion
12:30 - 13:30
Lunch break
Session 3
Carlos Calhaz-Jorge, Portugal
Giulia Scaravelli, Italy
13:30 - 14:00
From ANARA (Africa) to ANZARD (Australia) - How to condense data of different registries
Geoffrey David Adamson, U.S.A.
14:00 - 14:15
Discussion
14:15 - 14:45
Best practices of IVF registry: Linking surveillance, research, clinical practice and public health
Dmitry Kissin, U.S.A.
14:45 - 15:00
Discussion
15:00 - 15:30
Coffee break
Session 4
Carlos Calhaz-Jorge, Portugal
Jesper M.J. Smeenk, The Netherlands
15:30 - 16:00
Money meets data - The Austrian link of an IVF-registry and reimbursement
Heinz Strohmer, Austria
16:00 - 16:15
Discussion
16:15 - 16:45
The only statistics you can trust are those you falsified yourself - From basics statistics to interpretation
René Eijkemans, The Netherlands
16:45 - 17:00
Discussion