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Recommended reading

Fertility treatment, wellbeing & mental-health

Boivin, J. (2019). How does stress, depression and anxiety affect patients undergoing treatment? Obstet gynecol, 31(3), 195-9. https://doi.org/10.1097/GCO.0000000000000539

Boivin, J., Griffiths, E., & Venetis, C. A. (2011). Emotional distress in infertile women and failure of assisted reproductive technologies: meta-analysis of prospective psychosocial studies. BMJ, 342, d223. https://doi.org/ 10.1136/bmj.d223

Domar, A., Gordon, K., Garcia-Velasco, J., La Marca, A., Barriere, P., & Beligotti, F. (2012). Understanding the perceptions of and emotional barriers to infertility treatment: a survey in four European countries. Hum Reprod, 27(4), 1073-9. https://doi.org/10.1093/humrep/des016

French, L. R., Sharp, D. J., & Turner, K. M. (2015). Antenatal needs of couples following fertility treatment: a qualitative study in primary care. Br J Gen Pract, 65(638), e570-7. https://doi.org/10.3399/bjgp15X686473

Gameiro, S., & Finnigan, A. (2017). Long-term adjustment to unmet parenthood goals following ART: a systematic review and meta-analysis. Hum Reprod Update, 23(3), 322-37. https://doi.org/10.1093/humupd/dmx001

Gameiro, S., van den Belt-Dusebout, A. W., Smeenk, J. M., Braat, D. D., van Leeuwen, F. E., & Verhaak, C. M. (2016). Women's adjustment trajectories during IVF and impact on mental health 11-17 years later. Hum Reprod, 31(8), 1788-98. https://doi.org/10.1093/humrep/dew131

Hammarberg, K., Astbury, J., & Baker, H. (2001). Women’s experience of IVF: a follow-up study. Hum Reprod, 16(2), 374-83. https://doi.org/10.1093/humrep/16.2.374

Martins, M. V., Basto-Pereira, M., Pedro, J., Peterson, B., Almeida, V., Schmidt, L., & Costa, M. E. (2016). Male psychological adaptation to unsuccessful medically assisted reproduction treatments: a systematic review. Hum Reprod Update, 22(4), 466-78. https://doi.org/10.1093/humupd/dmw009

Moura-Ramos, M., Gameiro, S., Canavarro, M.C., Soares, I., & Santos, T.A. (2012). The indirect effect of contextual factors on the emotional distress of infertile couples. Psychol Health, 27(5), 533-49. https://doi.org/10.1080/08870446.2011.598231

Pedro, J., Canavarro, M. C., Boivin, J., & Gameiro, S. (2013). Positive experiences of patient-centred care are associated with intentions to comply with fertility treatment: findings from the validation of the Portuguese version of the PCQ-Infertility tool. Hum Reprod, 28(9), 2462-72. https://doi.org/10.1093/humrep/det259

Pedro, J., Vassard, D., Malling, G. M. H., Hougaard, C. O., Schmidt, L., & Martins, M. V. (2019). Infertility-related stress and the risk of antidepressants prescription in women: a 10-year register study. Hum Reprod, 34(8), 1505-13. https://doi.org/10.1093/humrep/dez110

Rockliff, H. E., Lightman, S. L., Rhidian, E., Buchanan, H., Gordon, U., & Vedhara, K. (2014). A systematic review of psychosocial factors associated with emotional adjustment in in vitro fertilization patients. Hum Reprod Update, 20(4), 594-613. https://doi.org/10.1093/humupd/dmu010

Rumbold, A. R., Moore, V. M., Whitrow, M. J., Oswald, T. K., Moran, L. J., Fernandez, R. C., Barnhart, K. T., & Davies, M. J. (2017). The impact of specific fertility treatments on cognitive development in childhood and adolescence: a systematic review. Hum Reprod, 32(7), 1489-507. https://doi.org/10.1093/humrep/dex085

Sobral, M. P., Costa, M. E., Schmidt, L., & Martins, M. V. (2017). COMPI Fertility Problem Stress Scales is a brief, valid and reliable tool for assessing stress in patients seeking treatment. Hum Reprod, 32(2), 375-82. https://doi.org/10.1093/humrep/dew315

Tallandini, M. A., Zanchettin, L., Gronchi, G., & Morsan, V. (2016). Parental disclosure of assisted reproductive technology (ART) conception to their children: a systematic and meta-analytic review. Hum Reprod, 31(6), 1275-87. https://doi.org/10.1093/humrep/dew068

Verhaak, C. M., Lintsen, A. M., Evers, A. W., & Braat, D. D. (2010). Who is at risk of emotional problems and how do you know? Screening of women going for IVF treatment. Hum Reprod, 25(5), 1234-40. https://doi.org/10.1093/humrep/deq054

Verhaak, C. M., Smeenk, J. M., van Minnen, A., Kremer, J. A., & Kraaimaat, F. W. (2005). A longitudinal, prospective study on emotional adjustment before, during and after consecutive fertility treatment cycles. Hum Reprod, 20(8), 2253-60. https://doi.org/10.1093/humrep/dei015

Wijs, L. A., Doherty, D. A., Keelan, J. A., Burton, P., Yovich, J. L., Robinson, M., & Hart, R. J. (2022). Mental health and behavioural problems in adolescents conceived after ART. Hum Reprod, deac214. https://doi.org/10.1093/humrep/deac214

Wischmann, T., Korge, K., Scherg, H., Strowitzki, T., & Verres, R. (2012). A 10-year follow-up study of psychosocial factors affecting couples after infertility treatment. Hum Reprod, 27(11), 3226-32. https://doi.org/10.1093/humrep/des293

Zhang, X., Deng, X., Mo, Y., Li, Y., Song, X., & Li, H. (2021). Relationship between infertility-related stress and resilience with posttraumatic growth in infertile couples: gender differences and dyadic interaction. Hum Reprod, 36(7), 1862-70. https://doi.org/10.1093/humrep/deab096

Fertility knowledge & awareness

Boivin, J., Bunting, L., & Gameiro, S. (2013). Cassandra's prophecy: a psychological perspective. Why we need to do more than just tell women. Reprod Biomed Online, 27(1), 11-4. https://doi.org/10.1016/j.rbmo.2013.03.021

Bracewell-Milnes, T., Holland, J. C., Jones, B. P., Saso, S., Almeida, P., Maclaran, K., Norman-Taylor, J., Nikolaou, D., Shah, N. M., Johnson, M., & Thum, M. Y. (2021). Exploring the knowledge and attitudes of women of reproductive age from the general public towards egg donation and egg sharing: a UK-based study. Hum Reprod, 36(8), 2189-2201. https://doi.org/10.1093/humrep/deab157

Bunting, L., Tsibulsky, I., & Boivin, J. (2013). Fertility knowledge and beliefs about fertility treatment: findings from the International Fertility Decision-making Study. Hum Reprod, 28(2), 385-97. https://doi.org/10.1093/humrep/des402

Chan, C. H., Chan, T. H., Peterson, B. D., Lampic, C., & Tam, M. Y. (2015). Intentions and attitudes towards parenthood and fertility awareness among Chinese university students in Hong Kong: a comparison with Western samples. Hum Reprod, 30(2), 364-72. https://doi.org/10.1093/humrep/deu324

Devroe, J., Peeraer, K., D'Hooghe, T. M., Boivin, J., Laenen, A., Vriens, J., & Dancet, E. A. F. (2022). Great expectations of IVF patients: the role of gender, dispositional optimism and shared IVF prognoses. Hum Reprod, 37(5), 997-1006. https://doi.org/10.1093/humrep/deac038

Harper, J. C., Hammarberg, K., Simopoulou, M., Koert, E., Pedro, J., Massin, N., Fincham, A., Balen, A., & International Fertility Education, I. (2021). The International Fertility Education Initiative: research and action to improve fertility awareness. Hum Reprod Open, 2021(4), hoab031. https://doi.org/10.1093/hropen/hoab031

Koert, E., Sylvest, R., Vittrup, I., Hvidman, H. W., Birch Petersen, K., Boivin, J., Nyboe Andersen, A., & Schmidt, L. (2020). Women's perceptions of fertility assessment and counselling 6 years after attending a Fertility Assessment and Counselling clinic in Denmark. Hum Reprod Open, 2020(4), hoaa036. https://doi.org/10.1093/hropen/hoaa036

Lampic, C., Svanberg, A. S., Karlstrom, P., & Tyden, T. (2006). Fertility awareness, intentions concerning childbearing, and attitudes towards parenthood among female and male academics. Hum Reprod, 21(2), 558-64. https://doi.org/10.1093/humrep/dei367

Martins, M. V., Fernandes, J., Pedro, J., Barros, A., Xavier, P., Schmidt, L., & Costa, M. E. (2022). Effects of trying to conceive using an every-other-day strategy versus fertile window monitoring on stress: a 12-month randomized controlled trial. Hum Reprod, deac228. https://doi.org/10.1093/humrep/deac228

Pasch, L. A., Holley, S. R., Bleil, M. E., Shehab, D., Katz, P. P., & Adler, N. E. (2016). Addressing the needs of fertility treatment patients and their partners: are they informed of and do they receive mental health services? Fertil Steril, 106(1), 209-215.E2. https://doi.org/10.1016/j.fertnstert.2016.03.006

Pedro, J., Brandao, T., Schmidt, L., Costa, M. E., & Martins, M. V. (2018). What do people know about fertility? A systematic review on fertility awareness and its associated factors. Ups J Med Sci, 123(2), 71-81. https://doi.org/10.1080/03009734.2018.1480186

Peterson, B. D., Pirritano, M., Tucker, L., & Lampic, C. (2012). Fertility awareness and parenting attitudes among American male and female undergraduate university students. Hum Reprod, 27(5), 1375-82. https://doi.org/10.1093/humrep/des011

Sylvest, R., Koert, E., Vittrup, I., Birch Petersen, K., Hvidman, H. W., Hald, F., & Schmidt, L. (2018). Men's expectations and experiences of fertility awareness assessment and counseling. Acta Obstet Gynecol Scand, 97(12), 1471-7. https://doi.org/10.1111/aogs.13449

Fertility decision-making

Baysal, O., Bastings, L., Beerendonk, C. C., Postma, S. A., IntHout, J., Verhaak, C. M., Braat, D. D., & Nelen, W. L. (2015). Decision-making in female fertility preservation is balancing the expected burden of fertility preservation treatment and the wish to conceive. Hum Reprod, 30(7), 1625-34. https://doi.org/10.1093/humrep/dev116

Chan, C. H., Lau, H. P., Tam, M. Y., & Ng, E. H. (2016). A longitudinal study investigating the role of decisional conflicts and regret and short-term psychological adjustment after IVF treatment failure. Hum Reprod, 31(12), 2772-80. https://doi.org/10.1093/humrep/dew233

Ehrbar, V., Urech, C., Alder, J., Harringer, K., Zanetti Dallenbach, R., Rochlitz, C., & Tschudin, S. (2016). Decision-making about fertility preservation-qualitative data on young cancer patients' attitudes and needs. Arch Womens Ment Health, 19(4), 695-9. https://doi.org/10.1007/s00737-016-0604-x

Ehrbar, V., Germeyer, A., Nawroth, F., Dangel, A., Findeklee, S., Urech, C., Rochlitz, C., Stiller, R., & Tschudin, S. (2021). Long-term effectiveness of an online decision aid for female cancer patients regarding fertility preservation: Knowledge, attitude, and decisional regret. Acta Obstet Gynecol Scand, 100(6), 1132-9. https://doi.org/10.1111/aogs.14108

Ehrbar, V., Urech, C., Rochlitz, C., Zanetti Dallenbach, R., Moffat, R., Stiller, R., Germeyer, A., Nawroth, F., Dangel, A., Findeklee, S., & Tschudin, S. (2019). Randomized controlled trial on the effect of an online decision aid for young female cancer patients regarding fertility preservation. Hum Reprod, 34(9), 1726-34. https://doi.org/10.1093/humrep/dez136

Gameiro, S., Boivin, J., Peronace, L., & Verhaak, C. M. (2012). Why do patients discontinue fertility treatment? A systematic review of reasons and predictors of discontinuation in fertility treatment. Hum Reprod Update, 18(6), 652-69. https://doi.org/10.1093/humupd/dms031

Harrison, C., Gameiro, S., & Boivin, J. (2021). Patient willingness, preferences and decision-making about planning for three complete cycles of IVF/ICSI treatment. Hum Reprod, 36(5), 1339-52. https://doi.org/10.1093/humrep/deab040

Jones, G., Hughes, J., Mahmoodi, N., Smith, E., Skull, J., & Ledger, W. (2017). What factors hinder the decision-making process for women with cancer and contemplating fertility preservation treatment? Hum Reprod Update, 23(4), 433-57. https://doi.org/10.1093/humupd/dmx009

Passet-Wittig, J., & Greil, A. L. (2021). Factors associated with medical help-seeking for infertility in developed countries: A narrative review of recent literature. Soc Sci Med, 277, 113782. https://doi.org/10.1016/j.socscimed.2021.113782

Peate, M., Meiser, B., Friedlander, M., Zorbas, H., Rovelli, S., Sansom-Daly, U., Sangster, J., Hadzi-Pavlovic, D., & Hickey, M. (2011). It's now or never: fertility-related knowledge, decision-making preferences, and treatment intentions in young women with breast cancer--an Australian fertility decision aid collaborative group study. J Clin Oncol, 29(13), 1670-7. https://doi.org/10.1200/JCO.2010.31.2462

Peddie, V. L., Porter, M. A., Barbour, R., Culligan, D., MacDonald, G., King, D., Horn, J., & Bhattacharya, S. (2012). Factors affecting decision making about fertility preservation after cancer diagnosis: a qualitative study. BJOG, 119(9), 1049-57. https://doi.org/10.1111/j.1471-0528.2012.03368.x

Peterson, B. (2017). A validated measure for fertility awareness: an essential step toward informed reproductive decision-making. Fertil Steril, 108(4), 606-7. https://doi.org/10.1016/j.fertnstert.2017.08.027

Rauprich, O., Berns, E., & Vollmann, J. (2011). Information provision and decision-making in assisted reproduction treatment: results from a survey in Germany. Hum Reprod, 26(9), 2382-91. https://doi.org/10.1093/humrep/der207

Vassard, D., Lund, R., Pinborg, A., Boivin, J., & Schmidt, L. (2012). The impact of social relations among men and women in fertility treatment on the decision to terminate treatment. Hum Reprod, 27(12), 3502-12. https://doi.org/10.1093/humrep/des353

Mills, M, Rindfuss, R. R., McDonald, P., & te Velde E., and on behalf of the ESHRE Reproduction and Society Task Force (2011). Why do people postpone parenthood? Reasons and social policy incentives. Hum Reprod Update, 17(6), 848-60. https://doi.org/10.1093/humupd/dmr026

Schmidt,L., Sobotka, T., Bentzen, J.G., and Nyboe Andersen A. (2012). Demographic and medical consequences of the postponement of parenthood. Hum Reprod Update, 18(1), 29-43. https://doi.org/10.1093/humupd/dmr040

Kearney, A. L., & White, K. M. (2016). Examining the psychosocial determinants of women’s decisions to delay childbearing. Hum Reprod, 31(8), 1776-87. https://doi.org/doi:10.1093/humrep/dew124

Ali, Z. E., Fraire-Zamora, J. J., Uraji, J., Makieva, S., Massarotti, C., Mincheva, M., Ammar, O. F., Llacer, J., Martins, M. V., Moura-Ramos, M., Wang, R., & Kohlhepp, F. (2022). #ESHREjc report: Discrete choice experiments and patient decision-making in ART. Hum Reprod, 37(4), 873-5. https://doi.org/10.1093/humrep/deac033

 

Fertility counselling & psychosocial interventions

Bai, C. F., Cui, N. X., Xu, X., Mi, G. L., Sun, J. W., Shao, D., Li, J., Jiang, Y. Z., Yang, Q. Q., Zhang, X., & Cao, F. L. (2019). Effectiveness of two guided self-administered interventions for psychological distress among women with infertility: a three-armed, randomized controlled trial. Hum Reprod, 34(7), 1235-48. https://doi.org/10.1093/humrep/dez066

Bailey, S., Boivin, J., Cheong, Y., Bailey, C., Kitson-Reynolds, E., & Macklon, N. (2020). Effective support following recurrent pregnancy loss: a randomized controlled feasibility and acceptability study. Reprod Biomed Online, 40(5), 729-42. https://doi.org/10.1016/j.rbmo.2020.01.022

Blyth, E. (2012). Guidelines for infertility counselling in different countries: Is there an emerging trend? Hum Reprod, 27(7), 2046-57. https://doi.org/10.1093/humrep/des112

Boivin, J. (2003). A review of psychosocial interventions in infertility. Soc Sci Med, 57(12), 2325-41. https://doi.org/10.1016/s0277-9536(03)00138-2

Boivin, J., Domar, A. D., Shapiro, D. B., Wischmann, T. H., Fauser, B. C., & Verhaak, C. (2012). Tackling burden in ART: an integrated approach for medical staff. Hum Reprod, 27(4), 941-50. https://doi.org/10.1093/humrep/der467

Boivin, J., & Gameiro, S. (2015). Evolution of psychology and counseling in infertility. Fertil steril, 104(2), 251-9. https://doi.org/10.1016/j.fertnstert.2015.05.035

Dancet, E. A., D'Hooghe, T. M., Sermeus, W., van Empel, I., Strohmer, H., Wyns, C., Santa-Cruz, D., Nardo, L. G., Kovatchki, D., Vanlangenakker, L., Garcia-Velasco, J., Mulugeta, B., Nelen, W. L., & Kremer, J. A. (2012). Patients from across Europe have similar views on patient-centred care: an international multilingual qualitative study in infertility care. Hum Reprod, 27(6), 1702-11. https://doi.org/10.1093/humrep/des061

Dancet, E. A., Nelen, W. L., Sermeus, W., De Leeuw, L., Kremer, J. A., & D'Hooghe, T. M. (2010). The patients' perspective on fertility care: a systematic review. Hum Reprod Update, 16(5), 467-487. https://doi.org/10.1093/humupd/dmq004

Daniluk, J. C., & Koert, E. (2015). Fertility awareness online: the efficacy of a fertility education website in increasing knowledge and changing fertility beliefs. Hum Reprod, 30(2), 353-63. https://doi.org/10.1093/humrep/deu328

Deshpande, N. A., Braun, I. M., & Meyer, F. L. (2015). Impact of fertility preservation counseling and treatment on psychological outcomes among women with cancer: A systematic review. Cancer, 121(22), 3938-47. https://doi.org/10.1002/cncr.29637

Domar, A. D., Gross, J., Rooney, K., & Boivin, J. (2015). Exploratory randomized trial on the effect of a brief psychological intervention on emotions, quality of life, discontinuation, and pregnancy rates in in vitro fertilization patients. Fertil steril, 104(2), 440-51. https://doi.org/10.1016/j.fertnstert.2015.05.009

Evans, S., Fernandez, S., Olive, L., Payne, L. A., & Mikocka-Walus, A. (2019). Psychological and mind-body interventions for endometriosis: A systematic review. J Psychosom Res, 124, 109756. https://doi.org/10.1016/j.jpsychores.2019.109756

Farshi, N., Hasanpour, S., Mirghafourvand, M., & Esmaeilpour, K. (2020). Effect of self-care counselling on depression and anxiety in women with endometriosis: a randomized controlled trial. BMC Psychiatry, 20(1), 391. https://doi.org/10.1186/s12888-020-02795-7

Fonseca, A., Pereira, M., Araújo-Pedrosa, A., Gorayeb, R., Moura Ramos, M., & Canavarro, M. C. (2018). Be a Mom: Formative Evaluation of a Web-Based Psychological Intervention to Prevent Postpartum Depression. Cogn Behav Pract, 25(4), 473-95. https://doi.org/10.1016/j.cbpra.2018.02.002

Frederiksen, Y., O'Toole, M. S., Mehlsen, M. Y., Hauge, B., Elbaek, H. O., Zachariae, R., & Ingerslev, H. J. (2017). The effect of expressive writing intervention for infertile couples: a randomized controlled trial. Hum Reprod, 32(2), 391-402. https://doi.org/10.1093/humrep/dew320

Galhardo, A., Cunha, M., & Pinto-Gouveia, J. (2013). Mindfulness-Based Program for Infertility: efficacy study. Fertil Steril, 100(4), 1059-67. https://doi.org/10.1016/j.fertnstert.2013.05.036

Galhardo, A., Moura-Ramos, M., Cunha, M., & Pinto-Gouveia, J. How Does the Mindfulness-Based Program for Infertility (MBPI) Work in Reducing Depressive Symptoms?. Mindfulness, 9(2), 629-35. https://doi.org/10.1007%2Fs12671-017-0805-z

Gameiro, S., Boivin, J., Dancet, E., de Klerk, C., Emery, M., Lewis-Jones, C., Thorn, P., Van den Broeck, U., Venetis, C., Verhaak, C. M., Wischmann, T., & Vermeulen, N. (2015). ESHRE guideline: routine psychosocial care in infertility and medically assisted reproduction-a guide for fertility staff. Hum Reprod, 30(11), 2476-85. https://doi.org/10.1093/humrep/dev177

Garcia, D., Vassena, R., Prat, A., & Vernaeve, V. (2016). Increasing fertility knowledge and awareness by tailored education: a randomized controlled trial. Reprod Biomed Online, 32(1), 113-20. https://doi.org/10.1016/j.rbmo.2015.10.008

Hughes, E. G., & da Silva, A. M. (2011). A pilot study assessing art therapy as a mental health intervention for subfertile women. Hum Reprod, 26(3), 611-5. https://doi.org/10.1093/humrep/deq385

Lancastle, D., & Boivin, J. (2008). A feasibility study of a brief coping intervention (PRCI) for the waiting period before a pregnancy test during fertility treatment. Hum Reprod, 23(10), 2299-307. https://doi.org/10.1093/humrep/den257

Lemmens, G. M., Vervaeke, M., Enzlin, P., Bakelants, E., Vanderschueren, D., D'Hooghe, T., & Demyttenaere, K. (2004). Coping with infertility: a body-mind group intervention programme for infertile couples. Hum Reprod, 19(8), 1917-23. https://doi.org/10.1093/humrep/deh323

Logan, S., & Anazodo, A. (2019). The psychological importance of fertility preservation counseling and support for cancer patients. Acta Obstet Gynecol Scand, 98(5), 583-97. https://doi.org/10.1111/aogs.13562

Maeda, E., Nakamura, F., Kobayashi, Y., Boivin, J., Sugimori, H., Murata, K., & Saito, H. (2016). Effects of fertility education on knowledge, desires and anxiety among the reproductive-aged population: findings from a randomized controlled trial. Hum Reprod, 31(9), 2051-60. https://doi.org/10.1093/humrep/dew133

Pedro, J., Fernandes, J., Barros, A., Xavier, P., Almeida, V., Costa, M. E., Schmidt, L., & Martins, M. V. (2022). Effectiveness of a video-based education on fertility awareness: a randomized controlled trial with partnered women. Hum Fertil (Camb), 25(3), 522-33. https://doi.org/10.1080/14647273.2020.1854482

Petok, W. D. (2015). Infertility counseling (or the lack thereof) of the forgotten male partner. Fertil Steril, 104(2), 260-6. https://doi.org/10.1016/j.fertnstert.2015.04.040

Rowbottom, B., Galhardo, A., Donovan, E., & Gameiro, S. (2022). Feasibility randomized controlled trial of a self-guided online intervention to promote psychosocial adjustment to unmet parenthood goals. Hum Reprod, 37(10), 2412-25. https://doi.org/10.1093/humrep/deac168

Sousa-Leite, M., Fernandes, M., Reis, S., Costa, R., Figueiredo, B., & Gameiro, S. (2022). Feasibility and acceptability of psychosocial care for unsuccessful fertility treatment. Health Expect. https://doi.org/10.1111/hex.13598

van Dongen, A. J., Nelen, W. L., IntHout, J., Kremer, J. A., & Verhaak, C. M. (2016). e-Therapy to reduce emotional distress in women undergoing assisted reproductive technology (ART): a feasibility randomized controlled trial. Hum Reprod, 31(5), 1046-57. https://doi.org/10.1093/humrep/dew040

Verkerk, E. W., Rake, E. A., Braat, D. D. M., Nelen, W., Aarts, J. W. M., & Kremer, J. A. M. (2022). The Tell me tool: The development and feasibility of a tool for person-centred infertility care. Health Expect, 25(3), 1081-93. https://doi.org/10.1111/hex.13455

Verkuijlen, J., Verhaak, C., Nelen, W. L., Wilkinson, J., & Farquhar, C. (2016). Psychological and educational interventions for subfertile men and women. Cochrane Database Syst Rev, 3(3), CD011034. https://doi.org/10.1002/14651858.CD011034.pub2

Warne, E., Oxlad, M., & Best, T. (2022). Evaluating group psychological interventions for mental health in women with infertility undertaking fertility treatment: A systematic review and meta-Analysis. Health Psychol Rev, 1-25. https://doi.org/10.1080/17437199.2022.2058582

van den Broeck, U., Marysa, E., Wischmann, T., & Thorn, P. (2010). Counselling in infertility: individual, couple and group interventions. Patient Educ Couns 81(3), 422-8. https://doi.org/10.1016/j.pec.2010.10.009

 

Fertility & COVID-19

Ashkenazi, M. S., Huseby, O. L., Kroken, G., Soto-Mota, A., Pents, M., Loschiavo, A., Lewandowska, R., Tran, G., & Kwiatkowski, S. (2022). COVID-19 pandemic and the consequential effect on patients with endometriosis. Hum Reprod Open, 2022(2), hoac013. https://doi.org/10.1093/hropen/hoac013

Ben-Kimhy, R., Youngster, M., Medina-Artom, T. R., Avraham, S., Gat, I., Marom Haham, L., Hourvitz, A., & Kedem, A. (2020). Fertility patients under COVID-19: attitudes, perceptions and psychological reactions. Hum Reprod, 35(12), 2774-83. https://doi.org/10.1093/humrep/deaa248

Boivin, J., Harrison, C., Mathur, R., Burns, G., Pericleous-Smith, A., & Gameiro, S. (2020). Patient experiences of fertility clinic closure during the COVID-19 pandemic: appraisals, coping and emotions. Hum Reprod, 35(11), 2556-66. https://doi.org/10.1093/humrep/deaa218

Carone, N., Manzi, D., Barone, L., Lingiardi, V., Baiocco, R., & Bos, H. M. W. (2021). Father-child bonding and mental health in gay fathers using cross-border surrogacy during the COVID-19 pandemic. Reprod Biomed Online, 43(4), 756-64. https://doi.org/10.1016/j.rbmo.2021.05.023

Dong, M., Wu, S., Tao, Y., Zhou, F., & Tan, J. (2021). The Impact of Postponed Fertility Treatment on the Sexual Health of Infertile Patients Owing to the COVID-19 Pandemic. Front Med (Lausanne), 8, 730994. https://doi.org/10.3389/fmed.2021.730994

Emery, T., & Koops, J. C. (2022). The impact of COVID-19 on fertility behaviour and intentions in a middle income country. PLoS One, 17(1), e0261509. https://doi.org/10.1371/journal.pone.0261509

Gordon, J. L., & Balsom, A. A. (2020). The psychological impact of fertility treatment suspensions during the COVID-19 pandemic. PLoS One, 15(9), e0239253. https://doi.org/10.1371/journal.pone.0239253

Kamath, M. S., Joseph, T., Karuppusami, R., Chinta, P., Pal, A., Nallamilli, S. R., Sarkar, S., Poobalan, A., & Kunjummen, A. T. (2021). Knowledge, anxiety levels and attitudes of infertile couples towards COVID-19 and its impact on self-funded fertility treatment: a cross-sectional questionnaire survey. Hum Reprod Open, 2021(4), hoab039. https://doi.org/10.1093/hropen/hoab039

Marom Haham, L., Youngster, M., Kuperman Shani, A., Yee, S., Ben-Kimhy, R., Medina-Artom, T. R., Hourvitz, A., Kedem, A., & Librach, C. (2021). Suspension of fertility treatment during the COVID-19 pandemic: views, emotional reactions and psychological distress among women undergoing fertility treatment. Reprod Biomed Online, 42(4), 849-58. https://doi.org/10.1016/j.rbmo.2021.01.007

Schwab, R., Stewen, K., Kottmann, T., Anic, K., Schmidt, M. W., Elger, T., Theis, S., Kalb, S. R., Brenner, W., & Hasenburg, A. (2022). Mental Health and Social Support Are Key Predictors of Resilience in German Women with Endometriosis during the COVID-19 Pandemic. J Clin Med, 11(13, 3684. https://doi.org/10.3390/jcm11133684

 

Fertility Preservation

Argyle, C. E., Harper, J. C., & Davies, M. C. (2016). Oocyte cryopreservation: where are we now? Hum Reprod Update, 22(4), 440-9. https://doi.org/10.1093/humupd/dmw007

Bastings, L., Baysal, O., Beerendonk, C. C., IntHout, J., Traas, M. A., Verhaak, C. M., Braat, D. D., & Nelen, W. L. (2014). Deciding about fertility preservation after specialist counselling. Hum Reprod, 29(8), 1721-9. https://doi.org/10.1093/humrep/deu136

Dahhan, T., van der Veen, F., Bos, A. M. E., Goddijn, M., & Dancet, E. A. F. (2021). The experiences of women with breast cancer who undergo fertility preservation. Hum Reprod Open, 2021(2), hoab018. https://doi.org/10.1093/hropen/hoab018

Deshpande, N. A., Braun, I. M., & Meyer, F. L. (2015). Impact of fertility preservation counseling and treatment on psychological outcomes among women with cancer: A systematic review. Cancer, 121(22), 3938-47. https://doi.org/10.1002/cncr.29637

Hodes-Wertz, B., Druckenmiller, S., Smith, M., & Noyes, N. (2013). What do reproductive-age women who undergo oocyte cryopreservation think about the process as a means to preserve fertility? Fertil Steril, 100(5), 1343-9. https://doi.org/10.1016/j.fertnstert.2013.07.201

Logan, S., & Anazodo, A. (2019). The psychological importance of fertility preservation counseling and support for cancer patients. Acta Obstet Gynecol Scand, 98(5), 583-97. https://doi.org/10.1111/aogs.13562

Platts, S., Trigg, B., Bracewell-Milnes, T., Jones, B. P., Saso, S., Parikh, J., Nicopoullos, J., Almeida, P., Norman-Taylor, J., Nikolaou, D., Johnson, M., & Thum, M. Y. (2021). Exploring women's attitudes, knowledge, and intentions to use oocyte freezing for non-medical reasons: A systematic review. Acta Obstet Gynecol Scand, 100(3), 383-93. https://doi.org/10.1111/aogs.14030

Provoost, V., Pennings, G., De Sutter, P., Gerris, J., Van de Velde, A., & Dhont, M. (2011). To continue or discontinue storage of cryopreserved embryos? Patients' decisions in view of their child wish. Hum Reprod, 26(4), 861-72. https://doi.org/10.1093/humrep/deq392

Sousa-Leite, M., Figueiredo, B., Ter Keurst, A., Boivin, J., & Gameiro, S. (2019). Women's attitudes and beliefs about using fertility preservation to prevent age-related fertility decline-A two-year follow-up. Patient Educ Couns, 102(9), 1695-1702. https://doi.org/10.1016/j.pec.2019.03.019

Stoop, D., Maes, E., Polyzos, N. P., Verheyen, G., Tournaye, H., & Nekkebroeck, J. (2015). Does oocyte banking for anticipated gamete exhaustion influence future relational and reproductive choices? A follow-up of bankers and non-bankers. Hum Reprod, 30(2), 338-44. https://doi.org/10.1093/humrep/deu317

Stoop, D., Nekkebroeck, J., & Devroey, P. (2011). A survey on the intentions and attitudes towards oocyte cryopreservation for non-medical reasons among women of reproductive age. Hum Reprod, 26(3), 655-61. https://doi.org/10.1093/humrep/deq367

Treves, R., Grynberg, M., Hesters, L., & Frydman, R. (2011). Fertility preservation in women with cancer: importance of a multidisciplinary approach. Women's Health, 7(5), 537-43. https://doi.org/10.2217/WHE.11.40

Tschudin, S., & Bitzer, J. (2009). Psychological aspects of fertility preservation in men and women affected by cancer and other life-threatening diseases. Hum Reprod Update, 15(5), 587-97. https://doi.org/10.1093/humupd/dmp015

 

Endometriosis

Culley, L., Law, C., Hudson, N., Denny, E., Mitchell, H., Baumgarten, M., & Raine-Fenning, N. (2013). The social and psychological impact of endometriosis on women's lives: a critical narrative review. Hum Reprod Update, 19(6), 625-39. https://doi.org/10.1093/humupd/dmt027

Culley, L., Law, C., Hudson, N., Mitchell, H., Denny, E., & Raine-Fenning, N. (2017). A qualitative study of the impact of endometriosis on male partners. Hum Reprod, 32(8), 1667-73. https://doi.org/10.1093/humrep/dex221

De Graaff, A. A., D'Hooghe, T. M., Dunselman, G. A., Dirksen, C. D., Hummelshoj, L., Consortium, W. E., & Simoens, S. (2013). The significant effect of endometriosis on physical, mental and social wellbeing: results from an international cross-sectional survey. Hum Reprod, 28(10), 2677-85. https://doi.org/10.1093/humrep/det284

Delanerolle, G., Ramakrishnan, R., Hapangama, D., Zeng, Y., Shetty, A., Elneil, S., Chong, S., Hirsch, M., Oyewole, M., Phiri, P., Elliot, K., Kothari, T., Rogers, B., Sandle, N., Haque, N., Pluchino, N., Silem, M., O'Hara, R., Hull, M. L., . . . Raymont, V. (2021). A systematic review and meta-analysis of the Endometriosis and Mental-Health Sequelae; The ELEMI Project. Women’s Health, 17, 17455065211019717. https://doi.org/10.1177/17455065211019717

Facchin, F., Barbara, G., Dridi, D., Alberico, D., Buggio, L., Somigliana, E., Saita, E., & Vercellini, P. (2017). Mental health in women with endometriosis: searching for predictors of psychological distress. Hum Reprod, 32(9), 1855-61. https://doi.org/10.1093/humrep/dex249

Gallagher, J. S., DiVasta, A. D., Vitonis, A. F., Sarda, V., Laufer, M. R., & Missmer, S. A. (2018). The Impact of Endometriosis on Quality of Life in Adolescents. J Adolesc Health, 63(6), 766-72. https://doi.org/10.1016/j.jadohealth.2018.06.027

Gambadauro, P., Carli, V., & Hadlaczky, G. (2019). Depressive symptoms among women with endometriosis: a systematic review and meta-analysis. Am J Obstet Gynecol, 220(3), 230-41. https://doi.org/10.1016/j.ajog.2018.11.123

Marki, G., Bokor, A., Rigo, J., & Rigo, A. (2017). Physical pain and emotion regulation as the main predictive factors of health-related quality of life in women living with endometriosis. Hum Reprod, 32(7), 1432-8. https://doi.org/10.1093/humrep/dex091

Rowlands, I. J., Teede, H., Lucke, J., Dobson, A. J., & Mishra, G. D. (2016). Young women's psychological distress after a diagnosis of polycystic ovary syndrome or endometriosis. Hum Reprod, 31(9), 2072-81. https://doi.org/10.1093/humrep/dew174

Simoens, S., Dunselman, G., Dirksen, C., Hummelshoj, L., Bokor, A., Brandes, I., Brodszky, V., Canis, M., Colombo, G. L., DeLeire, T., Falcone, T., Graham, B., Halis, G., Horne, A., Kanj, O., Kjer, J. J., Kristensen, J., Lebovic, D., Mueller, M., . . . D'Hooghe, T. (2012). The burden of endometriosis: costs and quality of life of women with endometriosis and treated in referral centres. Hum Reprod, 27(5), 1292-9. https://doi.org/10.1093/humrep/des073

Sullivan-Myers, C., Sherman, K. A., Beath, A. P., Duckworth, T. J., & Cooper, M. J. W. (2021). Delineating sociodemographic, medical and quality of life factors associated with psychological distress in individuals with endometriosis. Hum Reprod, 36(8), 2170-80. https://doi.org/10.1093/humrep/deab138

Van Niekerk, L., Johnstone, L., & Matthewson, M. (2022). Predictors of self-compassion in endometriosis: the role of psychological health and endometriosis symptom burden. Hum Reprod, 37(2), 264-73. https://doi.org/10.1093/humrep/deab257

 

Recurrent pregnancy loss

Hedegaard, S., Landersoe, S. K., Olsen, L. R., Krog, M. C., Kolte, A. M., & Nielsen, H. S. (2021). Stress and depression among women and men who have experienced recurrent pregnancy loss: focusing on both sexes. Reprod Biomed Online, 42(6), 1172-80. https://doi.org/10.1016/j.rbmo.2021.03.012

Koert, E., Malling, G. M. H., Sylvest, R., Krog, M. C., Kolte, A. M., Schmidt, L., & Nielsen, H. S. (2019). Recurrent pregnancy loss: couples' perspectives on their need for treatment, support and follow up. Hum Reprod, 34(2), 291-6. https://doi.org/10.1093/humrep/dey362

Kolte, A. M., Olsen, L. R., Mikkelsen, E. M., Christiansen, O. B., & Nielsen, H. S. (2015). Depression and emotional stress is highly prevalent among women with recurrent pregnancy loss. Hum Reprod, 30(4), 777-82. https://doi.org/10.1093/humrep/dev014

Ruderman, R. S., Yilmaz, B. D., & McQueen, D. B. (2020). Treating the couple: how recurrent pregnancy loss impacts the mental health of both partners. Fertil Steril, 114(6), 1182. https://doi.org/10.1016/j.fertnstert.2020.09.165

Voss, P., Schick, M., Langer, L., Ainsworth, A., Ditzen, B., Strowitzki, T., Wischmann, T., & Kuon, R. J. (2020). Recurrent pregnancy loss: a shared stressor-couple-orientated psychological research findings. Fertil Steril, 114(6), 1288-96. https://doi.org/10.1016/j.fertnstert.2020.08.1421

Third-party reproduction

Applegarth, L. D., Kaufman, N. L., Josephs-Sohan, M., Christos, P. J., & Rosenwaks, Z. (2016). Parental disclosure to offspring created with oocyte donation: intentions versus reality. Hum Reprod, 31(8), 1809-1815. https://doi.org/10.1093/humrep/dew125

Areias, J., Gato, J., & Moura-Ramos, M. (2022). Motivations and Attitudes of Men Towards Sperm Donation: Whom to Donate and Why?. Sex Res Soc Policy, 19(1), 147 58. http://dx.doi.org/10.1007/s13178-020-00531-0

Blake, L., Jadva, V., & Golombok, S. (2014). Parent psychological adjustment, donor conception and disclosure: a follow-up over 10 years. Hum Reprod, 29(11), 2487-96. https://doi.org/10.1093/humrep/deu231

Borgstrom, M. B., Nygaard, S. S., Danielsen, A. K., & Kesmodel, U. S. (2019). Exploring motivations, attitudes and experiences of oocyte donors: A qualitative study. Acta Obstet Gynecol Scand, 98(8), 1055-62. https://doi.org/10.1111/aogs.13583

Bracewell-Milnes, T., Saso, S., Bora, S., Ismail, A. M., Al-Memar, M., Hamed, A. H., & Thum, M. Y. (2016). Investigating psychosocial attitudes, motivations and experiences of oocyte donors, recipients and egg sharers: a systematic review. Hum Reprod Update, 22(4), 460-5. https://doi.org/10.1093/humupd/dmw006

Carter, J., Applegarth, L., Josephs, L., Grill, E., Baser, R. E., & Rosenwaks, Z. (2011). A cross-sectional cohort study of infertile women awaiting oocyte donation: the emotional, sexual, and quality-of-life impact. Fertil Steril, 95(2), 711-6e1. https://doi.org/10.1016/j.fertnstert.2010.10.004

ESHRE Working Group on Reproductive Donation, Kirkman-Brown, J., Calhaz-Jorge, C., Dancet, E. A., Lundin, K., Martins, M., ... & Frith, L. (2022). Good practice recommendations for information provision for those involved in reproductive donation. Hum Reprod Open, 2022(1), hoac001. https://doi.org/10.1093/hropen/hoac001

Gartrell, N. K., Bos, H., Goldberg, N. G., Deck, A., & van Rijn-van Gelderen, L. (2015). Satisfaction with known, open-identity, or unknown sperm donors: reports from lesbian mothers of 17-year-old adolescents. Fertil steril, 103(1), 242-8. https://doi.org/10.1016/j.fertnstert.2014.09.019

Golombok, S., Blake, L., Casey, P., Roman, G., & Jadva, V. (2013). Children born through reproductive donation: a longitudinal study of psychological adjustment. J Child Psychol Psychiatry, 54(6), 653-60. https://doi.org/10.1111/jcpp.12015

Harper, J. C., Kennett, D., & Reisel, D. (2016). The end of donor anonymity: how genetic testing is likely to drive anonymous gamete donation out of business. Hum Reprod, 31(6), 1135-40. https://doi.org/10.1093/humrep/dew065

Indekeu, A., Maas, A. J. B., McCormick, E., Benward, J., & Scheib, J. E. (2021). Factors associated with searching for people related through donor conception among donor-conceived people, parents, and donors: a systematic review. F&S Reviews, 2(2), 93-119. https://doi.org/10.1016/j.xfnr.2021.01.003

Imrie, S., Jadva, V., & Golombok, S. (2019). Psychological well-being of identity-release egg donation parents with infants. Hum Reprod, 34(11), 2219-27. https://doi.org/10.1093/humrep/dez201

Imrie, S., Lysons, J., Jadva, V., Shaw, K., Grimmel, J., & Golombok, S. (2022). Parent-child relationship quality and child psychological adjustment in families created using egg donation: children's perspectives at age 5 years. Hum Reprod, 37(3), 499-509. https://doi.org/10.1093/humrep/deab265

Jadva, V., Freeman, T., Kramer, W., & Golombok, S. (2011). Sperm and oocyte donors' experiences of anonymous donation and subsequent contact with their donor offspring. Hum Reprod, 26(3), 638-45. https://doi.org/10.1093/humrep/deq364

Madero, S., Gameiro, S., Garcia, D., Cirera, D., Vassena, R., & Rodriguez, A. (2017). Quality of life, anxiety and depression of German, Italian and French couples undergoing cross-border oocyte donation in Spain. Hum Reprod, 32(9), 1862-70. https://doi.org/10.1093/humrep/dex247

Sälevaara, M., Punamäki, R. L., Unkila-Kallio, L., Vänskä, M., Tulppala, M., & Tiitinen, A. (2018). The mental health of mothers and fathers during pregnancy and early parenthood after successful oocyte donation treatment: A nested case-control study. Acta Obstet Gynecol Scand, 97(12), 1478-85. https://doi.org/10.1111/aogs.13421

Schlaff, W. D., & Braverman, A. M. (2015). Introduction: Mental health counseling in third party reproduction. Fertil Steril, 104(3), 499-500. https://doi.org/10.1016/j.fertnstert.2015.07.1156

 

Surrogacy

Constantinidis, D., & Cook, R. (2012). Australian perspectives on surrogacy: the influence of cognitions, psychological and demographic characteristics. Hum Reprod, 27(4), 1080-7. https://doi.org/10.1093/humrep/der470

Dar, S., Lazer, T., Swanson, S., Silverman, J., Wasser, C., Moskovtsev, S. I., Sojecki, A., & Librach, C. L. (2015). Assisted reproduction involving gestational surrogacy: an analysis of the medical, psychosocial and legal issues: experience from a large surrogacy program. Hum Reprod, 30(2), 345-52. https://doi.org/10.1093/humrep/deu333

Golombok, S., MacCallum, F., Murray, C., Lycett, E., & Jadva, V. (2006). Surrogacy families: parental functioning, parent-child relationships and children's psychological development at age 2. J Child Psychol Psychiatry, 47(2), 213-22. https://doi.org/10.1111/j.1469-7610.2005.01453.x

Golombok, S., Readings, J., Blake, L., Casey, P., Marks, A., & Jadva, V. (2011). Families created through surrogacy: mother-child relationships and children's psychological adjustment at age 7. Dev Psychol, 47(6), 1579-88. https://doi.org/10.1037/a0025292

Imrie, S., & Jadva, V. (2014). The long-term experiences of surrogates: relationships and contact with surrogacy families in genetic and gestational surrogacy arrangements. Reprod Biomed Online, 29(4), 424-35. https://doi.org/10.1016/j.rbmo.2014.06.004

Jadva, V., & Imrie, S. (2014). Children of surrogate mothers: psychological well-being, family relationships and experiences of surrogacy. Hum Reprod, 29(1), 90-6. https://doi.org/10.1093/humrep/det410

Jadva, V., Murray, C., Lycett, E., MacCallum, F., & Golombok, S. (2003). Surrogacy: the experiences of surrogate mothers. Hum Reprod, 18(10), 2196-204. https://doi.org/10.1093/humrep/deg397

Klock, S. C., & Lindheim, S. R. (2020). Gestational surrogacy: medical, psychosocial, and legal considerations. Fertil Steril, 113(5), 889-91. https://doi.org/10.1016/j.fertnstert.2020.03.016

Soderstrom-Anttila, V., Wennerholm, U. B., Loft, A., Pinborg, A., Aittomaki, K., Romundstad, L. B., & Bergh, C. (2016). Surrogacy: outcomes for surrogate mothers, children and the resulting families-a systematic review. Hum Reprod Update, 22(2), 260-76. https://doi.org/10.1093/humupd/dmv046

Van Rijn-van Gelderen, L., Bos, H. W. M., Jorgensen, T. D., Ellis-Davies, K., Winstanley, A., Golombok, S., Rubio, B., Gross, M., Vecho, O., & Lamb, M. E. (2018). Wellbeing of gay fathers with children born through surrogacy: a comparison with lesbian-mother families and heterosexual IVF parent families. Hum Reprod, 33(1), 101-8. https://doi.org/10.1093/humrep/dex339

Yau, A., Friedlander, R. L., Petrini, A., Holt, M. C., White, D. E., 2nd, Shin, J., Kalantry, S., & Spandorfer, S. (2021). Medical and mental health implications of gestational surrogacy. Am J Obstet Gynecol, 225(3), 264-9. https://doi.org/10.1016/j.ajog.2021.04.213